{"id":55469,"date":"2025-03-27T16:28:59","date_gmt":"2025-03-27T16:28:59","guid":{"rendered":"https:\/\/shef-live.co.uk\/?p=55469"},"modified":"2025-03-27T16:28:59","modified_gmt":"2025-03-27T16:28:59","slug":"man-with-end-stage-kidney-failure-is-forced-to-have-home-dialysis-in-his-garage","status":"publish","type":"post","link":"https:\/\/shef-live.co.uk\/index.php\/2025\/03\/27\/man-with-end-stage-kidney-failure-is-forced-to-have-home-dialysis-in-his-garage\/","title":{"rendered":"Man with end-stage kidney failure is forced to have home dialysis in his garage"},"content":{"rendered":"\n

A family is appealing for support to fund a home dialysis space after being denied financial aid.<\/p>\n\n\n\n

Ben Parker, 42, from Barnsley, is battling end-stage kidney failure for the second time in his life and relies on dialysis four to five times a week. <\/p>\n\n\n\n

His wife, Sam has launched a fundraiser to help convert their garage into a safe and sterile dialysis room.<\/p>\n\n\n\n

\u201cBen has always struggled with his health having multiple health problems his whole life,\u201d Mrs Parker said. <\/p>\n\n\n\n

Mr Parker was told he had total kidney failure in 2018 and had to have a transplant when their daughter was just a baby. <\/p>\n\n\n\n

He was then diagnosed with two auto-immune diseases: C3G and ANCA (Anca Vasculitis). He also has chronic asthma and epilepsy. <\/p>\n\n\n\n

C3G affects just two in a million people and there is no known cure for it.<\/p>\n\n\n\n

In 2019, Mr Parker was able to get a transplant allowing him to experience a few years without intrusive dialysis treatment.<\/p>\n\n\n\n

Mrs Parker said: \u201cWe could spend time as a family and Ben could enjoy watching our daughter grow up.\u201d<\/p>\n\n\n\n

But, in late 2023, Mr Parker’s kidney started deteriorating again, forcing him back onto dialysis, a long process lasting four hours, about four to five times a week.<\/p>\n\n\n\n

To ease the pressure, the family opted for home dialysis. However, without a dedicated room, their daughter’s bedroom was the best option. <\/p>\n\n\n\n

They started dialysing at home in November 2024, and try to do the sessions during the day while their daughter is at school to minimise the impact on her.<\/p>\n\n\n\n

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Mrs Parkers said: \u201cOur daughter has never known anything other than her daddy always being poorly and it breaks my heart when she says things like ‘when Daddy gets better…’.\u201d<\/p>\n\n\n\n

The couple then decided the best way for a home dialysis was to convert their garage, but needed funding since they cannot work full time due to Ben’s dialysis needs.\u00a0<\/p>\n\n\n\n

In April 2024, they applied for a disabled facilities grant, but were told they didn’t meet the criteria. An appeal was unsuccessful.<\/p>\n\n\n\n

Mrs Parker decided to reach out for help through a fundraiser, which has since raised over \u00a36,000.<\/p>\n\n\n\n

\u201cWe\u2019ve been blown away, overwhelmed, grateful for everything,\u201d Mrs Parker said.<\/p>\n\n\n\n

Through their Instagram, the couple has been sharing updates on the project, and recently fitted in the dialysis in their garage.<\/p>\n\n\n\n

Mr Parker said home dialysis \u201cfeels very liberating because when you go into hospital to have it done you kind of are dependent on somebody all the time\u201d.<\/p>\n\n\n\n

Their fundraiser is accessible via : https:\/\/www.gofundme.com\/f\/help-me-fundraise-to-create-a-home-dialysis-room-at-home<\/a><\/p>\n\n\n\n

Instagram : https:\/\/www.instagram.com\/yorkshireladhomehd?igsh=d2kyMDRnZ3Vhdm5w<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

A family is appealing for support to fund a home dialysis space after being denied financial aid. Ben Parker, 42, from Barnsley, is battling end-stage kidney failure for the second time in his life and relies on dialysis four to five times a week. His wife, Sam has launched a fundraiser to help convert their […]<\/p>\n","protected":false},"author":217,"featured_media":55478,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[8,5,156,1],"tags":[],"class_list":["post-55469","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health","category-news","category-top-story-3","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/posts\/55469","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/users\/217"}],"replies":[{"embeddable":true,"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/comments?post=55469"}],"version-history":[{"count":4,"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/posts\/55469\/revisions"}],"predecessor-version":[{"id":55497,"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/posts\/55469\/revisions\/55497"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/media\/55478"}],"wp:attachment":[{"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/media?parent=55469"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/categories?post=55469"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/shef-live.co.uk\/index.php\/wp-json\/wp\/v2\/tags?post=55469"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}